special interests

 

Some call it obsession, some think it narrow

but in our family we love special interests;

with intensity, with all we’ve got

we focus, we explore, we research and find out.

Our knowledge creates a safe space in which we can curl up and rest.

Familiar and known.

Digging and drawing,

collecting and cuddling, playing and gaming,

gather the facts, devour the info.

It is expertise we can share.

Breathe it all in, get the sand between your toes,

the clarity of focus takes experience deep, deep, deeper;

you can taste it, smell it, know it.

It’s all or nothing,

all in, or not at all.

That’s the wonder and beauty of special interests.

And in the pursuit we see

fierce loyalty, tenacity against the odds;

a single-mindedness that isn’t swayed.

Peer pressure can’t touch this.

So yes, some may think it narrow, some think we obsess.

I guess some may even find it boring,

but in this family we love special interests.

In them we see echoes of a Creator, a Father’s heartbeat.

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logistics of a short break

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Sunny weather, beautiful home-cooked food, the sea, sand and sky – what more could we need! We managed to get away for a few days during the school break to spend some time with family.

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It was beautiful to get to the sea. As T commented it is a place which can make you feel ‘free’; on the beach she had space; to talk, sing, collect, dance, watch, notice, feel. (Of course, sensory overload is never far away so short doses required!)

Getting away for a break is tiring though (Oh the irony).

Routines are very different. As a guest you don’t want to call the shots about what and when meals will be, and the unknowing brings its own anxieties when you already live with anxieties about eating. Our animals and familiar surroundings are missed terribly even for a few days. New surroundings means unfamiliar smells, textures, sounds all of which can be tiring to adjust to and difficult to relax around. Family time inevitably includes trying to balance different needs, some needing and wanting to see new places and explore new experiences while others need and want to do the same outings or watch the same movies as last time we visited.

Getting away involves major transitions; leaving and arriving and travelling in-between – twice! And it’s logistically challenging. Choosing outfits in advance, trying to wisely pack the right extras (toys, books, sensory fiddles etc) to keep things calm in all the little gaps, medications (forgot my own this time which didn’t help anything) and those essentials without which the challenge of the new cannot be faced. Making sure things back at base are ready enough for the return.

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Here are my tips for keeping short breaks as smooth sailing as possible in the midst of all the challenges ASC, PDA & SPD throw up…

  • Don’t give in to the embarrassment of taking too much luggage. I struggle with this one even when we are staying with family. Even a few days requires a lot of stuff for us. But the times we have tried to cut things out we have regretted it. If the dolls need suitcases too so be it!
  • Screens come too. If no internet access then favourite programmes must be downloaded in advance. Check favourite games/apps to see if they need internet access, and if so find one that doesn’t and try and introduce it well in advance of the trip.
  • pack some snacks and nibbles (or even a tin or 2) that will almost always be eaten to have on standby. Just knowing they are there can help reduce anxiety.
  • Do some things that you always do at that place so that not everything is new every visit.
  • We are National Trust members which has been so helpful for us over the years. Each new place has a very similar feel to it, and a similar set of components – a house to look round, a garden to ramble through, a play area, a cafe/picnic areas and toilets. So new places can be explored whilst still feeling manageable. Also being members (paying a yearly fee) means we don’t stress if an outing only lasts a short time. There is no pressure to make the day last if it’s not working for whatever reason.
  • Try not to forget essential medication (note to self!!).
  • Take timers/visual timetables etc if you are using them regularly at home. Don’t expect it all to feel easier.
  • Pack sensory toys and fidgets.
  • Anything that makes bedtime feel familiar in a new place needs to come too. Is it a particular blanket, their own pillowcase, a cuddly toy that’s always there, their own clock to hear the same ticking as usual, using the very same devotions or prayer – whatever it is, work it out, pack it and still prepare for some even more sleepless nights than usual.
  • Don’t forget to take lots of pics; stop and take a breath every now and then to remind yourself to enjoy it all and notice all the good bits (after all dancing on the beach is not to be missed!).
  • And when you get home, take a moment to be aware of the many things that happen much more smoothly because of the home and family routine you help put in place – you might need to remind yourself in a few days time!

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DIY no sew weighted lap cushion

Well, it’s been a long week. T has been off school unwell at the beginning of the week which is always tiring. She gets very anxious when she’s unwell, and needs a lot of tlc day and night. She is now back at school, and improving but it has prompted me to look for new ideas to help bring calm!

One that I came across sounded potentially so multi-taskingly helpful that I thought I’d give it a go. Weighted blankets is something we’ve thought about for T but never quite got there. They are pricey or appear to be fiddly and time consuming to DIY (or at least they have become those feelings whenever I think about trying!) But yesterday I came across a no-sew weighted lap blanket/cushion which may give us the chance to find out whether T responds well to having a weighted blanket in the first place before I try and attempt to make one. And into the bargain, it uses mermaid fabric so it can be calmingly drawn and written into whilst using it.

It just so happens I have a mermaid fabric cushion cover waiting in a drawer for the right crafty moment so I have got it out this morning and got going.

The tutorial that inspired me can be found over on ‘lemon lime adventures’.

As is my usual crafting approach I raided the cupboards and used what I had. But I’m pleased with the initial result and am looking forward to T trying it out when she gets back. Friday night is movie night for us so it’s the perfect chance to give it a go. I’ll let you know how it goes.

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  • Raided the cupboards and found dried split peas, and little stones. Ziplock bags and of course the cushion cover.
  • Simply divided up the stones and peas, laid them across an old micro fibre towel and taped them down with box tape/parcel tape. Then folded the other half of the towel over and taped across to hold it all together.

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  • A little bit of careful jiggling and wriggling into the cushion cover, and zipped it shut!
  • Now enjoy!

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How can it be nearly December?? what happened in November

I’m not sure what happened to November this year!

It’s been fast and furious in our family this year. After the settling down into new patterns of school and college at the beginning of term, November has seen homework and assessments… and the planning and organizing of work experience placements which is daunting. This term A has been involved in the school musical again, ‘Legally Blonde’ so he’s been busy with rehearsals and this week with the shows. We went to see it together, really fun. (Came away with plenty to unravel and talk about with T afterwards though, maybe more of that in another blog.)

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Little Jaffsie enjoying a secret hideout in the garden

The kittens have reached the age to begin exploring the garden – though I am nervous, and closely supervise still. My worries not at all calmed by Jaffa discovering how to get up on the garage roof already. Padfoot is still being kept inside, his health has not been good since we’ve had him and there are ongoing investigations and tests with the vets. So for now it’s easier to monitor him in the house. It’s easy to make sure he gets tonnes of cuddles and fuss – he just laps it up. They are becoming a wonderful part of family life, Padfoot particularly seems to sense when to curl up near someone who needs calming, and Jaffa is a bundle of energy and curiosity which is a great motivator.

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helping with bathtime

All the usual stuff of course is still being shoehorned into each week – although sadly the washing Himalayas is actually a mountain range of epic proportions as I write despite my best efforts! And no matter how often I hoover, it always needs doing. And best not to even comment on the lack of tidiness – it’s overrated I reckon.

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Padfoot (aka paddington!) investigating our latest creation – a gingerbread house

We have had some together time of Friday evening – one week even a film we all watched together (quite often we divide into two groups for Friday chillin out) – and we made our kittens a gingerbread house at the same time, partly inspired by the film choice: ‘Charlie and the Chocolate Factory’. Little projects to occupy while we wait for the start help such a lot, and I’m on high alert all the time I find it near impossible these days to relax with a film so it kept me busy too! We’ve also ‘enjoyed’ some Friday family times shaped by meltdowns and struggle – so it’s good for me to sit and remember a good one.

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It’s been difficult to say goodbye to one of our lovely loyal guinea pigs this month. Custard Cream died very unexpectedly. And we miss him. We have planted a beautiful Hebe where he is buried. And the other half of the duo – Bourbon Biscuit – has been brought inside for the winter and is getting a lot of looking after from T. The two hamsters are fine – rather cheeky around the kittens, always popping out to stare at them, and trying to have a little nip if the kittens get too close. And the chickens, bless them, have been malting so look a bit scruffy and sorry for themselves but are fine.

Church life is gearing up for Christmas on top of all the usual busyness – I have yet to begin everything that needs doing for family Christmas of course, but somehow it seems to always come together in time (and what doesn’t, doesn’t matter). And schools have a lot of extras, Christmas Fairs, services, concerts, mufti days, discos… most weeks I struggle to keep up with what’s happening when and for whom!! I’ve also finally got round to filling in yet more forms to apply for carers allowance with the encouragement of a good friend. These things take such a lot of energy! Really thankful Andrew is a detail person, November has been a month and a half!

 

 

Bible reading together: free printable for scrapbooking with God

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I have been having a think about different ways we can look at understanding Bible stories together when we do manage to read them. There are layers of understanding going on whenever we read the Bible. Understanding of the language itself, and the ins and outs of the stories is happening. But as well as that there is a process of understanding that the story is part of our own story, they are words that give us identity and definition, they shape our own life – this happens on a cultural and a faith level. And as well as that there is the spiritual understanding, we believe this book to be full of words through which God speaks into our lives, words through which the Holy Spirit breathes life into our hearts whispering how we belong, how we are forgiven, how we are loved.

I have produced some doodle pages that might help me enable us to explore these different layers of understanding as we read the Bible together. Each page opens up discussion and thinking in one of these layers.

Download free printable