the unexpected conversation – prayer

 

When you actually stop and think about it prayer is unbelievable – in the awestruck sense! One simple, everyday word that means approaching the Creator, Eternal God, and being invited not just to an audience with majesty but also being invited to climb onto our Father’s knee.

Last week I was involved in ‘prayer week’ at the local secondary school (one of the things I do is being an active member of the school’s chaplaincy team). It’s a week when one of the year groups gets brought to a prayer discovery/experience lesson led by us as part of the RE curriculum. We then also go and visit RE lessons and answer questions and chat together about their thoughts on Christians and prayer.

Of course not all students are Christians and the activities we plan hope to open up discussion and a chance to chat with us as chaplains about our experience of prayer and what it means to us. We even decided to make 1 min ‘what prayer means to me’ videos this year that could be used in classes! Scary!

 

Lots of the discussions I had were so interesting, hearing why students thought we might pray, and why they didn’t. It was good to have that space to chat honestly about faith together. I love doing things like this – despite it terrifying me! – the conversations are so real, no facades.

One comment in particular stuck me, that prayer sounds scary. Yes, I think it does when you stop and think about it. I mean we really, genuinely believe prayer is communicating with God the Almighty, Father, Son and Holy Spirit…don’t we? Not just words of comfort said in hope that someone might be listening. Not wishing. Not putting coins into the vending machine to get what’s on our list. Christians dare to believe that prayer is communication with God. That student’s comment made me wonder about how mundane and chore like we can often make prayer sound like – to others and perhaps to ourselves too.

Prayer is such an unexpected invitation. A privilege. A crazy, unbelievable conversation. We can be ourselves, we can speak and the Bible suggests that Father God enjoys listening, and wants us to come to him as Dad! How unexpected is that.

The day to day modelling and teaching about prayer continues in our family life – with its ups and downs, questions and wonderings. Prayer out loud together with each other can seem rare and surprising. But God’s greater than all that, listening and present and constantly drawing us into conversation. The other night T didn’t actually say ‘No’ when I asked if there was anything she wanted to talk with God about, and there was a little pause of quiet followed by a ‘yep, done it!’. I smiled, and felt fairly certain Father God did too.

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How can it be nearly December?? what happened in November

I’m not sure what happened to November this year!

It’s been fast and furious in our family this year. After the settling down into new patterns of school and college at the beginning of term, November has seen homework and assessments… and the planning and organizing of work experience placements which is daunting. This term A has been involved in the school musical again, ‘Legally Blonde’ so he’s been busy with rehearsals and this week with the shows. We went to see it together, really fun. (Came away with plenty to unravel and talk about with T afterwards though, maybe more of that in another blog.)

Little Jaffsie enjoying a secret hideout in the garden

The kittens have reached the age to begin exploring the garden – though I am nervous, and closely supervise still. My worries not at all calmed by Jaffa discovering how to get up on the garage roof already. Padfoot is still being kept inside, his health has not been good since we’ve had him and there are ongoing investigations and tests with the vets. So for now it’s easier to monitor him in the house. It’s easy to make sure he gets tonnes of cuddles and fuss – he just laps it up. They are becoming a wonderful part of family life, Padfoot particularly seems to sense when to curl up near someone who needs calming, and Jaffa is a bundle of energy and curiosity which is a great motivator.

helping with bathtime

All the usual stuff of course is still being shoehorned into each week – although sadly the washing Himalayas is actually a mountain range of epic proportions as I write despite my best efforts! And no matter how often I hoover, it always needs doing. And best not to even comment on the lack of tidiness – it’s overrated I reckon.

Padfoot (aka paddington!) investigating our latest creation – a gingerbread house

We have had some together time of Friday evening – one week even a film we all watched together (quite often we divide into two groups for Friday chillin out) – and we made our kittens a gingerbread house at the same time, partly inspired by the film choice: ‘Charlie and the Chocolate Factory’. Little projects to occupy while we wait for the start help such a lot, and I’m on high alert all the time I find it near impossible these days to relax with a film so it kept me busy too! We’ve also ‘enjoyed’ some Friday family times shaped by meltdowns and struggle – so it’s good for me to sit and remember a good one.

It’s been difficult to say goodbye to one of our lovely loyal guinea pigs this month. Custard Cream died very unexpectedly. And we miss him. We have planted a beautiful Hebe where he is buried. And the other half of the duo – Bourbon Biscuit – has been brought inside for the winter and is getting a lot of looking after from T. The two hamsters are fine – rather cheeky around the kittens, always popping out to stare at them, and trying to have a little nip if the kittens get too close. And the chickens, bless them, have been malting so look a bit scruffy and sorry for themselves but are fine.

Church life is gearing up for Christmas on top of all the usual busyness – I have yet to begin everything that needs doing for family Christmas of course, but somehow it seems to always come together in time (and what doesn’t, doesn’t matter). And schools have a lot of extras, Christmas Fairs, services, concerts, mufti days, discos… most weeks I struggle to keep up with what’s happening when and for whom!! I’ve also finally got round to filling in yet more forms to apply for carers allowance with the encouragement of a good friend. These things take such a lot of energy! Really thankful Andrew is a detail person, November has been a month and a half!

 

 

glossary of a diagnosis

It seems a lifetime ago that we began the long search for understanding – the pathways to a diagnosis. Ultimately as parents we long to deeply bond with and get to know our children, these wonderful, tiny, unique gifts. We long to understand so we can share life together, and provide well for their needs and watch them thrive and grow. Looking for a diagnosis for us was not a desire for a label, or to find the right ‘box’ – it was to understand and from that understanding to love the best we can, support the best we can, and protect the best we can.

There have been so many professions and medical terms that we have encountered in the process, it has been a little bewildering at times and definitely overwhelming sometimes. But I have definitely learnt a lot: here’s a taste of some of the phrases we have had to find out about!

• ADOS – a set of observational assessments used to diagnose autism.
• Autism – Also known as Autism Spectrum Condition, and Autism Spectrum Disorder. A condition with distinct areas of difference (neuro-divergence) from the norm (neuro-typical) in terms of thinking and imagination, social interaction and communication – in our house we refer to these differences as superpowers!

Autism is a spectrum condition. All autistic people share certain difficulties, but being autistic will affect them in different ways.

These differences, along with differences in diagnostic approach, have resulted in a variety of terms being used to diagnose autistic people. Terms that have been used include autism, autism spectrum disorder (ASD), autism spectrum condition (ASC), atypical autism, classic autism, Kanner autism, pervasive developmental disorder (PDD), high-functioning autism (HFA), Asperger syndrome and pathological demand avoidance (PDA). (from the national autistic society)

• Alexithymia – inability to identify and describe your own emotions.
• Dermatillomania – compulsive picking of skin.
• DISCO – a lengthy questionnaire based diagnostic assessment.
• Echolalia – a very precise copying of a word or phrase, from TV or a person. Sometimes for self-calming like stimming, sometimes for communication.
• EHCP – Education & Health Care Plan, fairly new in the UK it’s aim is to be a joined up thinking, legal document of a child’s needs and support needed as they go through the education system.
• Hypermobility – Hypermobile joints, but also for some hypermobile or stretchy skin, and joining tissues throughout the body with huge affects on health. Ehlers Danlos has found this is also a spectrum condition with sub-diagnostic terms. (Find out more about EDS here.)

 

 

 

• IEP – an Independent Education Plan, a system of setting goals and reviewing in a positive cycle with school.
• Lanugo – fine downy hair growing on back or face when the body is in starvation mode. Not a term I want to have found out about really.
• Meltdown – different from temper tantrums, connected to sensory information overload. I wrote more about it here.
• One sided verbosity – not taking turns in conversation; rather talking at someone, using a lot of words.
• …Refusal – School Refusal; absolute paralysing panic about going to and being at school resulting in extreme avoidant behaviour (hiding, throwing, kicking, biting, running away). It can mean it is impossible to keep going to school for some. Food Refusal; panic about eating resulting in extreme avoidant behaviour. Can be connected to sensory hypersensitivity, neophobia (fear of new – normal phase in early childhood), and cognitive rigidity (connected to context, utensils, brand, look of the food). It means a restricted diet, and heaps of anxiety around food.
• Selective mutism – I have written about this here; an inability to speak due to panic.
• SEND – Special Educational Needs and Disabilities – a term used in schools where there will be a list of students identified as having SEND, and a SENCO (Special Educational Needs Coordinator) whose job is to coordinate support.
• Sensory Processing – talking about the way our brain & body works to process the information it receives through the senses (taste, smell, sight, sounds, touch, knowing where our body is, understanding what the inside of our body is needing/doing) Just as each of us experiences pain differently, all the senses can be experienced differently. Sometimes someone can be hypersensitive to a particular type of sensory information, and/or hypo sensitive (not able to take in enough sensory feedback in a particular area).

• Sleep Hygiene – a term used to mean the good habits and routines that help our bodies get a good and easy night’s sleep. You know, no screens near to bedtime, ‘bath, story, bed’, have a calming bedroom, lights out etc. You can do courses in this too – yes been there done that!
• Slow processing – talking about the speed your brain can take in information (either visual information, or audible) and respond to it.
• Stimming – a repetitive movement, sound or word used to self regulate.
• Webster-Stratton – a parenting philosophy and method. It’s not specific to autism, and you’d recognize it by it’s ‘time out’ method (1 min for every year old, no communication, stay on the step…). I completed basic and advanced levels at our local children’s center. But found the strategies didn’t work with us. I also found I wanted to adapt the time out process to include a sorry & forgiven stage. The part that was useful was the chance to see that we were getting lots of good parenting done – and that B’s reactions and behaviours were not typical.
• 1,2,3 Magic – another parenting course, this time written by someone with autism in mind. Confusingly it uses the phrase ‘time out’ in a completely different way – a time to calm down and regulate. All about picking your battles, ‘contracts’, simple strategies, and tailoring rewards & consequences to your child.

I’m sure there are loads more that haven’t come to mind right now. And I’m certain there are heaps more still to encounter.

 

 

 

peace, not necessarily peacefulness

Goodness it’s been quite a half term in the Porter house! A new school for T, college for the first time for B, and the beginning of the exam years for A. Plus new chaplaincy work for Andrew alongside church, and all the usual responsibilities. Of course, for me this has brought yet more steep learning curves and the challenges of stepping up to the new ways support from me is needed for everyone. Trying to understand and navigate the Further Ed support systems, beginning to build partnership and communication with new tutors and teachers. Reading and re-reading policies and guidelines, law and recommendations to try and work out what adjustments and support it is reasonable to ask for, what I need to find independently and what simply isn’t out there that I’m going to need to creatively put in place myself. One of my friends reminds me that I once said to her that chaos is chaos – no matter how much more you put into the mix, but my goodness it feels as if we have chaos full to bursting at the moment!

Yesterday the secondary school where I’m on the chaplaincy team had a service all about peace. At the end there was a time of reflection with beautiful music being played. In between the boys behind me asking me what different questions on the reflection sheet meant (which I loved chatting about) I sat and read, and re-read ‘my peace I give to you… do not be troubled, do not be upset’. And I sat there and heard Jesus say these words into all of the above and more, and I became aware of my aching painful permanently stressed out shoulders and neck, and I pondered this gift of peace. Given into the midst of the storms of life.

“I’m telling you these things while I’m still living with you. The Friend, the Holy Spirit whom the Father will send at my request, will make everything plain to you. He will remind you of all the things I have told you. I’m leaving you well and whole. That’s my parting gift to you. Peace. I don’t leave you the way you’re used to being left—feeling abandoned, bereft. So don’t be upset. Don’t be distraught.” (John 14:27, MSG)

We rarely have ‘peaceful’ times in our family life together. And when we do it’s short lived. We work hard to find ‘peacefulness’ and rest for each of us – we each find it in different ways and places. A good book, quiet, dancing to loud music, gardening, walking, animals, being alone, being with others, baking, drawing and painting, playing, minecraft, SIMS… But it’s elusive and fleeting, the ‘peace’ we can find for ourselves in those ways. It’s needed respite but it doesn’t come close to the deep seated, welling up, strong, protecting all around me kind of peace that I sense Jesus is talking about.

I think I began learning what this Jesus peace might be like when I was only a child. Words from a song we played on a record over and over, and sang along to have stayed with me through the years and pop into my mind to remind me of the truth I grabbed hold of as a child listening to ‘the music machine’: ‘peace is holding Jesus’ hand’. It is active, holding onto him, trusting in who he is. It is a gift, he stands next to me with his hand stretching out to be held onto, giving himself. He is our peace. We are accepted, loved, understood. We are safe and held through every storm of life. We are not defined and restricted by the systems we have to navigate but defined by and in this belonging with Jesus. Our well being and purposefulness rests in our belonging with him.

My belonging in him can give me the courage I need. I can lean into his love for me when worries yet again try to overwhelm me. When everything feels as if I am wading through treacle I can be sure I am with the one who can speak to howling wind and dangerous waves – and put them in their place! The troubles, worries, concerns, mountains we face do not disappear but we are not bereft or alone. We are ‘holding Jesus’ hand’.

 ‘I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world.’ (John 16:33 NIV)

 

 

selective (not selected) mutism

It’s a very unhelpful name, selective mutism I think. If we were in the middle of a game of word association it might be followed by ‘choice’, ‘choose’, ‘select’. I can understand how it can so easily be misunderstood as ‘shyness’, ‘manipulative’, ‘oppositional behaviour’, ‘stubbornness’. We hear the phrase and immediately jump to the misunderstanding that the child is selecting when to speak and when not to. It’s more accurate to understand it as the mutism is selective, not the child. It gets it’s name from the way that the mutism is only seen in certain contexts and not in others not because it is implying choice.

The most helpful way I’ve found of thinking of selective mutism is to focus on the physiological. It is known that in moments of extreme anxiety or panic the body’s fight/flight/freeze mode affects us physically. Our body’s hormone balances for example are completely upturned, in order to get ready to run or fight. One of the physical affects can be the seizing up of the muscles needed for speech – including the vocal chords. So in that situation of panic speech is simply not physically possible. And that is selective mutism. An outworking of extreme anxiety. For some this anxiety is seen in group contexts (even of familiar people); for others with strangers; for others it is in particular places; for some when under the pressure of a direct question; or simply in front of others. It stems from social anxiety, social phobia and anxiety about demands. Responding to selective mutism as if it is ‘stubbornness’ or ‘manipulative behaviour’, or ‘a shy phase’ ignores and adds to the anxiety.

Selective mutism can affect autistics as well as others. And it can make life very challenging, and scary – imagine needing something and being completely unable to ask for help and get support. It makes being in new situations and places especially difficult when you know you cannot stop and ask for directions or check something with the teacher or your classmates. It can make learning hard work when you are unable to ask for help or clarification. It can make friendships and social times, like lunch breaks, really challenging.

There is really helpful advice and explanations at SMIRA.

I especially like way the article ends:

 Celebrate your child’s unique qualities
We cannot change the personality of SM children – and wouldn’t want to! They are naturally sensitive individuals who take life seriously and set themselves impossibly high standards. The downside is a tendency to be overwhelmed by novelty, change and criticism; the upside is an empathetic, loyal and conscientious nature.

How to support?

• be kind – patience not pressure
• surprises add to anxiety
• give more time than you think for an answer
• praise achievements
• disappointment and disapproval are definitely not wanted
• support the anxiety
• help find safe ways and places to calm and regulate
• enable coping strategies for anxiety
• remember it is selective but not selected

It is not easy to truly understand or appreciate another person’s experience of anxiety – we all get worried about things from time to time, and it’s all to easy to assume other’s worries feel and affect them the same way that ours affect us. Our expectations are too often shaped by our own experiences. But to be able to support we need to put those expectations to one side and take on board the extreme level of anxiety being experienced by someone with selective mutism. It is not a choice. It will not be easily and quickly ‘got over’ or ‘snapped out of’. It is quite paralyzing. And can be so very isolating.